Beloved readers, here’s what’s been going on in my life lately. Your girl is getting great press. I started my new aerobics class Fat Kid Dance Party. We’re finally moving! I’m throwing myself into spiritual healing for my grief. Bevin’s Tea is still brewing.
I am remembering the legacy of resistance I come from. Before every event and performance I produce I do a circle prayer/offering of good intentions where I honor our queer ancestors. (If you’re curious what that looks like skip ahead to minute 9 of this video.) I don’t take for granted my ability to be a fat queer flamboyant femme, I know that just thirty years ago I wouldn’t have this access to express my authentic self. The ease I have being a weirdo in this world is because of the blood, sweat, and resistance of those people that came before.
It looks like it might get harder to be a weirdo for awhile. And at least I know that we have communities and we can create some really beautiful shit. And grass roots works a lot faster than government, the glacial pace of regression under Drumpf won’t be able to move as fast as we will. We can support each other and we can continue to make change.
Capricorns are the goat climbing the mountain. Persistent, ambitious, success-driven, not showing weakness. The cardinal Earth sign. The Keep It Together and Look Good Doing It sign.
I understood Grandmother’s reticence to ask for help when she got swept away to the hospital, to sit in a bed by herself and not call her kids or grandchildren. Just to do it on her own and not bother anyone. Getting away with not seeming like a mess or like she needed anything.
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Cancer has claimed another amazing queer pal of mine at a young age.
Ellie Conant was a kind, magical creator of community space. Her parties (Choice Cunts, among others) were legendary in the NYC queer scene when I moved to town and I was honored to join her as a party creator. She was exciting to party with and really fun to be around. She was the kind of person who showed up and instantly made you feel like a friend. And even though maybe you never ended up grabbing that coffee together because. NYC. Busy. We saw each other in crowded bars, clubs, community events and always shared squeezes and managed to have a five minute meaningful conversation.
When I posted my thoughts about being a good ally to fat folks by getting neutral about food, Dara and I have had a lot of conversations about it, including a pretty startling revelation that I wasn’t aware of. It turns out that Dara, working to get neutral about her food self-talk in order to be a better ally to me as a fat person, was able to transition to a low-sugar anti-cancer lifestyle a lot easier with food neutrality than if she had kept up agonizing about food being “bad” or “good.” Her words on this are below.
When Heather Von St. James was diagnosed with mesothelioma, as a new mom, she was full of fear. In her own words:
I was only given 15 months to live, and had to undergo a life changing procedure. On February 2nd I had my lung removed, which my sister declared LungLeavin’ Day. We celebrate it every year by writing our biggest fears on a plate, and smashing them into a fire. LungLeavin’ Day grows bigger every year.
I know first hand how powerful it is to have a project to pour your fears and intention into in the wake of life altering change… When my partner Dara was going through chemo for breast cancer, her chemo karaoke video production and her cancer vlog were incredible for her to orient herself towards looking for the positive. It also gave her something to focus on in the meanwhile to get to the next moment.
One night after our second round of watching Broad City, I said, “What if you made a Make a Wish video and asked Abbi and Ilana to write you into their show?” Dara immediately countered with, “I should get them to come be in my Chemo Karaoke video shoot!”
So we did it. Why not? It was a low-stakes, really fun way to spend an evening, making the video. And even if Abbi and Ilana couldn’t come to the video shoot, at least it was a way to say thank you for producing art that was really delighting us during a time that was pretty shitty… It’s never a bad time to make someone feel good about themselves, as my bestie Rachael likes to say.
Abby and Ilana were busy writing the second season of their amazing show and couldn’t come to the shoot. But they did invite us to be their guests at their show the night before Dara’s birthday party.
Lucky is a great way to describe how we feel post treatment—we saw the movie the Fault in Our Stars, about a teenage girl with terminal cancer. It really hit home how temporary love can be. And even though the length of love is sometimes short, it can still have important, life changing intensity.
I feel like Dara’s cancer treatment was a life changing intensity kind of time for me… as it was for Dara. We’re excited to see what our relationship is like after cancer treatment.
It can be so hard to think that what you are able to do is not enough for your friend or loved one. I had no idea whether visiting Macy in the puppy hospital mattered to her or not, especially in those moments when I had to give her back to the vet techs. Saying goodbye was awful. It wasn’t perfect that I could only be there for an hour, or a half an hour, or whatever, but it was something. I had to trust it was going to help her get better and not feel so lonely.
As a follow-up to my post about Dara’s experience with chemo I thought it might also be helpful, and provide some background for other posts around my care taking lessons learned, to talk about the process of her diagnosis and the surgery prior to chemo for her breast cancer. This is also another information dump sort of post—it’ll be interesting for someone who might be going through this process or having someone they know going through it to read a detailed experience.
My friend Kelli Dunham, a stand-up comic and nurse, posted a video she made about planning for unplanned health care and I think it is one of the most brilliant things I’ve seen about how complicated it is to have a non-normative body while trying to navigate the health care system. I absolutely had to share it with my readership.
One of the biggest motivating forces behind my work as a body liberation activist is getting people to love their bodies enough to take care of them and to dismantle the system that pathologizes fat people just for their fat. My beloved step mother died at age 48 after being prescribed fen-phen–she was being treated for her fat not her actual symptoms. What a fucking hassle to have a body that is immediately targeted and treated incorrectly because people buy the myth that fat is automatically unhealthy. This happens far too often.
Before Dara started chemo I’d known plenty of people with cancer at a variety of ages. Other than understanding that chemo is extremely difficult and disabling, I didn’t know what was involved. Going through the chemo process with someone as girlfriend and primary caregiver has been an extremely different experience and there is a lot that I’ve learned. Helping to ease the discomfort of the person you love the most in the world is a huge motivator to suck up information like a sponge! I wrote the below for a friend who asked for a relative about to go through chemo and I thought it might be a helpful blog post. It’s long so I tried to create headers and bold stuff for easy reference. I’ll write more another post about my experience as a caregiver (I’ve learned a lot) and about the other parts of her treatment.
Dara’s experience with chemo hasn’t been consistent as side effects change and shift. Before she started her treatment everyone (doctors, nurses, former/current chemo patients and their caregivers) said that all bodies react differently to chemo and things will be somewhat unpredictable. Even all the research we did ahead of time wasn’t really helpful until she was actually going through the experience. This is an account just of one person’s experience with the physical and emotional affects of chemo as they’re happening.