Post Cancer Treatment Life in a Nutshell

It’s been awhile since I posted substantively and when I get to this point I get into these quagmires, “But there’s no context for me on my blog anymore!” I like this space to be an ongoing narrative of who I am and what I’m doing at the intersections of these identities of queer, fat and femme. So to kick off more posts about what I’m excited about, here’s a newsy update.

IMG_20140816_203125Dara and I had a great “progressive dinner” date where we went to three different restaurants for different courses. This was for the vegan ice cream course at Van Leeuwan in Brooklyn.

Post Cancer Treatment

Dara is doing well post-cancer treatment. She is really loving life, she has a zest that is similar to her love of life pre-treatment, except her zest is more gentle and self-loving now. She has a way of really being present and relaxing into the idea that a day doing nothing is the perfect way to keep from working too much.

IMG_20140822_220118Me and Dara at a rooftop party a couple of weeks ago. I love when you get to tower over a sea of blingie skyscrapers.

We have so much fun together. We had fun during cancer, she often tells me I “made cancer fun.” My opinion throughout was why should cancer treatment not be a series of tumblr post worthy, good photo opportunity adventures? So that’s what it kind of was. But even as we made the best of things, it was still with a bit of a pall covering everything. Without most of that damper we’re having even more fun now. Everything feels a bit more joyful, with the gratitude of not being in cancer treatment.

We’re doing tons of new stuff. We went to a park neither of us had been to at the foot of the George Washington Bridge on the Hudson River to take a tennis lesson. I haven’t played tennis as an adult and I never took to it in high school; I don’t mean to brag but I lettered in badminton. I was all set on racket sports and didn’t need that clunky tennis racket to cloud my badminton focus!

IMG_20140821_204956

But tennis as an adult! It’s pretty fun and quite a workout. I’m sold! Dara and I went to another tennis lesson in a different park and it wasn’t nearly as fun, so now we’re on the hunt for the perfect city tennis situation.

She has her zest back but not quite her endurance… she injured her knee and two other body parts within a week. She has insomnia from the Tamoxifin, a hormone blocker that she has to take forever. Or like 10 years. So that’s another ding for energy.

We are hoping to go apple picking and camping this month! And next month we’ll reprise our trip to Southern California we were supposed to take in June when her father passed away suddenly. It feels healing to schedule out the adventures we want to take and folks we want to visit. I feel really lucky we’re able to do that.

Lucky is a great way to describe how we feel post treatment—we saw the movie the Fault in Our Stars, about a teenage girl with terminal cancer. It really hit home how temporary love can be. And even though the length of love is sometimes short, it can still have important, life changing intensity.

I feel like Dara’s cancer treatment was a life changing intensity time for me… as it was for Dara. We’re excited to see what our relationship is like after cancer treatment. I think we’ll both be different after treatment. (This was also why I declined to move in with her after cancer treatment—I want us to just have fun together for awhile instead of adding another pile of stress to the end of what has been a really difficult year for me.)

Macy’s Recovery

20140821_175210Family selfie.

My beloved dog Macy had surgery for a ruptured disc in July and her recovery is ongoing. Her intense separation anxiety post-hospital has finally waned. Perhaps it was taking her to that first tennis lesson with all that noise and flying balls that convinced her that insisting on being with her people 24/7 wasn’t necessary, but she is finally able to be left at home alone again. For awhile I couldn’t even leave her in my bedroom for two minutes without her wailing. It was very intense.

Macy has to begin pricey physical therapy for her hind leg. She is walking on all of her legs, which is huge progress from the surgery, but she’s limping really hard, her body is shaped kind of like a comma when she walks, curved to the right. She can’t jump onto furniture and she can’t push open the doors in the house anymore like she used to, and she’s bearing 80% of her weight on the front legs which can lead to more problems down the road.

I hope that the physical therapy involves hydro therapy because it is very cute to watch in you tube videos. It’s also very successful at strengthening weakened legs so I’m hopeful for a full recovery.

IMG_20140816_214812The third stop on our progressive dinner date, short ribs poutine from Mile End. Macy in her “accessibility backpack” that enabled us to take her all over the place this summer when she couldn’t be left alone. She even went to an outdoor YoYo Ma concert with Dara in the Berkshires! I picked up the backpack on Amazon for $44 and think it’s a great value.

Macy’s only ten years old and she’s otherwise perfectly healthy. Her veterinary neurologist expects that she’ll live out her days (Shih Tzus live to be about 16). So here’s a pro-tip, if your friend’s dog has had major surgery, don’t say anything like “She’s had a great life!” It’s really different to have a pet diagnosed with a chronic illness or an injury than to get a terminal diagnosis! She has had a great life (she was photographed in Time Out New York and Curve Magazine before I ever was!) but she has a lot more life to live!

I am still visioning for Macy to make it into People Magazine and Southern Living Magazine, two of my favorites. Maybe even Oprah Mag. But mostly, I’m still visioning lots of fun adventures for my charming and magical Shih Tzu!

Plus Size Party Girl

Instead of producing monthly parties, I’m now focusing my energy on less frequent bigger productions. Though, in lieu of all of that, I took a hiatus while Dara was going through treatment.

I just finished producing Dollypalooza, an Epic Fan Tribute to Dolly Parton on 9/5 (get it?). It was the biggest production I’ve ever taken on single-handedly. (Way to come back to party planning with a bang!)

bevingroupsingdollypaloozabyJenaCumboDrae Campbell, Miss Mary Wanna, Me, World Famous *BOB* and MILK from RuPaul’s Drag Race Season 6. Photo by Jena Cumbo for the Village Voice.

It reminded me of the intensity of Picnic Day when I was in college. That was the UC Davis open house—all departments, student organizations, sports teams, etc… put on some kind of exhibit or event. There was a parade, six stages of entertainment, a student activities fair. Legendary events during my tenure on the Picnic Day Board were the dachshund races in the basketball stadium, cockroach races in the Entemology Department and the fistulated cow demonstration by the College of Agriculture. The fistulated cow was a cow who had a hole cut into her stomach so people could put on a glove and reach their hand into the cow’s stomach to retrieve partially digested grass–cows digest the same food several times. It was rightfully shut down by animal rights protestors in the late 90s.

Obviously, there’s a lot that goes into coordinating that kind of event, involving a board of 20 and 500+ volunteers. There was a frenzy that overtook me and the entire board of organizers of Picnic Day the week before the event. I remember super late nights in the Picnic Day office laminating photographs into security passes. Dollypalooza was the closest I’ve ever come as an adult to that feeling. I love planning and executing major events, especially unusual ones that bring people joy. The lights in folks’ eyes when I fliered for Dollypalooza let me know I was on to something.

IMG_20140906_153536Me and my hero World Famous *BOB*–as her performance she told an amazing story about meeting Dolly Parton and had everyone from the show on stage at the end to group sing Hard Candy Christmas.

We made almost $700 for the Imagination Library in the raffle, Dolly’s literacy charity that sends books every month to kids in need, and it was an unforgettable show. I am brimming with ideas for next year. But I definitely know I can’t take on anything like that single-handedly again. I’m super grateful for Dara’s help—she did some amazing PR work that got a videographer from ABC News to come by, and some interest from People Magazine. My friend Jess, who brought me to Dollywood for the first time, took over the raffle and made that part so easy for me. We also figured out how to do a contest to send the performer who brought the most people in the door to Dollywood and got a raffle donation from Dollywood Cabins! At the end of the show, I felt like Oprah telling people “You go to Dollywood! And YOU go to Dollywood!”

IMG_6337The gorgeous view from the Dollywood Cabin I stayed in last May.

Mental and Emotional Health

Seeing a counselor with the Lesbian Cancer Initiative was the best choice I made as a caregiver during treatment. She pointed out to me going into post-treatment that I would have an adjustment period, and so would Dara. It is a significant energy shift.

IMG_20140829_162150This isn’t for the LCI but it’s from Callen Lorde, my physical health provider.

I’m in the weird process of looking for a therapist for the first time in my adult life. I’ve got about 50 possibilities from friends and am whittling it down. I am intentionally being really public about this process because my mental and emotional health are really high priorities for me and I want to encourage folks to feel empowered about seeking help. While things feel like the “calm after the storm” right now, I also think that the amount of life traumas I’ve faced in the past 12 months is unusual and I’d like to sort through them with a professional. Last night I had a dream about a friend of mine who passed last November and I’m about to go to Atlanta for the first time since her funeral. Crisis mode means you just scoot from one trauma to the next without digesting time, and I want to make sure I can go back in and digest things. Kind of like a metaphorical fistulated cow demonstration.

So that’s me in a nutshell (I really wish I had a picture of me in a nutshell).

Oh, and the first stop on our progressive dinner date (all in outdoor venues that allowed us to have our special needs Shih Tzu) was crispy kale salad in the backyard of Battersby… It was a great date!

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