My life looks like this: I plan an organize an event that takes literally hundreds of hours to put together, during lulls in the event I am surfing CraigsList on my phone’s tiny internet for apartments in Brooklyn. Because all of my stressors in my life are hitting a great glitter douche* of crazy all at once. I’ve seen 18 apartments in the last week and a half and haven’t found a good one yet. Mostly they are all recent renovations with no space and high rents that want me to be excited about stainless steel appliances. Seriously, all I want is some good counter space in the bathroom, closet space and a few windows. My future roommate agrees.
FemmeCast’s Femme Shark Correspondent Leah Lakshmi Piepzna-Samarasinha came out for a clandestine visit/gig for API month at Swarthmore last weekend and it was a welcome distraction from everything to hang out and do life planning and road tripping with her. She went looking for apartments with me and I caught a bit on tape. (I want to start a video blog but need to figure out how to get the video editing software I need for PC. Eventually.) So here’s a bit of that adventure, for your pleasure.
Also, since Leah’s birthday is next week, she is doing a fund drive for her friend Fran Varian, whose writing is amazing. I can give $20 as soon as my next unemployment check hits, but what I can’t offer in cash I can offer in spreading the word. So if you have $10 to give, please do. I’d love to see Leah meet a fund raising goal for her fierce friend for her birthday.
Hope this email finds you well. I’m turning 34 next Tuesday, yay! And
while I am open to give am open to gifts of makeup or books or another
besides the two miniskirts I wear all the time (I am a size 12-14 in
the ass), what I’m writing to ask is if folks could make a donation
for my birthday
to my friend Frances Varian, who is struggling with late term Lyme
Disease and is literally fighting for her life as an uninsured
working-class queer femme writer and badass.
Some of you know Fran: for those who don’t, she is an awesome abortion
provider, queer femme working-class writer and (can I say it again)
badass. You may have seen her on stage at any number of gay-ass events
in the Bay over the last few years, and she’s a former Seattle
national slam team champion. You can see some of her work here:
http://www.franvarian.com/, and here:
Fran has been really sick for the past four years. What started out as
fatigue, muscle weakness and getting sick at the drop of a hat only
diagnosed with late-stage Lyme Disease- and when I say only recently
diagnosed, I mean that Fran fought for two years in SF to get anyone
to look at her increasingly frightening symptoms. Fran originally
believed she had fibro, and we were some of each other’s first
disability buddies. However, my health got better and hers got worse,
to the point where she now is dealing with heart problems, constant
nausea, spasms and seizures and worse stuff. She was diagnosed,
finally, a year ago with Lyme, an autoimmune disorder that is
having critical effects on her health, and which is difficult to
treat, both because of the lateness when it is finally diagnosed and
because of a medical industry that dismisses many patients who have
it . Late stage Lyme works a lot like late stage syphyllis in terms of
symptoms- some folks go into dementia as the spirochites that cause
Lyme go into the brain. Others die of heart failure in their 30s as
they penetrate the heart.
Fran is literally fighting for her life, as an uninsured woman with a
disease that is misdiagnosed and dismissed throughout the medical
world. Her fight has made her move to Durham, NC to live with her
partner, because it’s cheaper than the Bay and she’s found doctors who
will help her- a choice that carries the cost of isolating her from
the community that loves her. She’s had a PICC line installed in her
arm since last fall, and is in the middle of an intense course of
intravenous anti-viral and bacterial treatment that her docs say is
her one shot of beating this. And, she’s paying for the whole damn
thing out of pocket.
What I really want for next year’s birthday is Fran healthy, able to
move back to the Bay ) and reading poetry next to me. What I really
want is for my friend to not be another story of a working-class queer
femme fireball who died a preventable death of an immune disease in
her 30s- like Heather McAllister, the amazing, beloved queer fat femme
icon, who died of ovarian cancer as an uninsured woman in her 30s two
years ago. As a chronically ill woman who knows that I have lived and
gotten better because of the support and love of my community, I am
reaching out to my community to help my friend.
Anything you can spare will go to help Fran and her partner Dante to
pay for her treatment. You can donate here: http://www.helphealfran.org/
My goal is to raise $2,000 for Fran in the next two weeks, which will
enable her to pay for her next round of treatment.
Please donate on her website, but if you don’t mind dropping me a note (brownstargirl at gmail dot com)
letting me know how much you were able to give so I can track how much
is going to Fran, it would rock.
In love, lipgloss and revolution,
*Glitter douche is a word I just learned from Cherry Poppins. Used by Kings N Things in Austin, TX, it describes the act of anything that “is that crucial moment in a performance (often drag pieces) when you grab glitter and toss it out over the audience. The glitter could also, say, come from an object, such as an umbrella opening dramatically and showering glitter out over the stage. We also occasionally make use of ‘confetti douches’ or ‘rose petal douches.’ Regardless of the material used, a gender performance show wouldn’t be complete without douching of some sort.”
Here I am trying to picture all of the moving parts of my life as little pieces of glitter flying all over the place. Instead of a shit storm, which is sort of what it feels like.
I've talked about celebrating the fact that we are glitter identified people on the blog before. But I'd like to get deeper and start thinking about what are we doing every day that is putting together our amazing glittery lives? How are our lives beautiful right this minute? Where is our "too much" coming from, piece by piece?
Sometimes I find reading other people's shines* really inspirational so hopefully you will find mine inspirational, too.
When one has friends scattered throughout the world and Facebook links us together, we get to have intense fear of missing out (FOMO) when we see all of the amazing photos and events going on without us. KFW lives in Oakland* and I live in Brooklyn and I have never experienced such intense “I WISH I COULD HAVE BEEN THERE” as when I heard about the Unicorn Party she threw.